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  • 首頁 環境時評人與自然最新動態焦點追蹤法律法規環境評價環保產業國內新聞國際新聞環境知識

    國內新聞

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    鏡觀中國·新華社國內新聞照片一周精選

    來源:網絡整理 人氣:次瀏覽 發布時間:2019-06-13

    原標題:鏡觀中國·新華社國內新聞照片一周精選

    (鏡觀中國·新華社國內新聞照片一周精選)(2)罕見的擁抱

      罕見的擁抱

      2月27日,罕見病病友程利婷(右)和黃靜在北京天橋藝術中心的小劇場演出后相擁告別。

      2月27日晚,在北京天橋藝術中心小劇場,一場主題為“罕見的擁抱”的公益共創戲劇在這裡演出。15名罕見病病友和家屬,在兩位導演的指導下,經過為期三天的工作坊培訓和兩天的彩排,將一個個充滿共性又各不相同的生命故事搬上舞臺。

      世界衛生組織將罕見病定義為患病人群佔總人口0.65‰至1‰的疾病或病變,目前國際確認的罕見病種類約有6000種至8000種,它們絕大部分屬於先天性、慢性病。我國罕見病患者總人數超過2000萬。2月28日是第十二個國際罕見病日,今年的主題是“連接健康和社會關懷”。

      導演陳美蘋從2005年開始推動公眾戲劇和藝術,她自2018年年底就跟北京病痛挑戰公益基金會秘書長王奕鷗一起商量,想通過共創戲劇的形式把罕見病病友的故事講述出來。她提前與每位參與者進行視頻溝通,發現他們都有很強的表達欲。另外一位導演梁婉雲則擔心病友們沒有演出經驗,還有身體能否經受緊張的排練。

      2月27日晚,病友們有條不紊地表演著自己的故事,演出非常順利,感動了很多觀眾。“我們希望觀眾能夠看到這個世界的不一樣,用一顆更寬的心去接納跟我們不一樣的人。”導演陳美蘋說。

      新華社記者 張玉薇 攝

       

    (責編:陳思危、史建中)

    頻道精選

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